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A myAMDteam Member asked a question 💭
Minster, OH
December 7, 2024
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Answer Summary

Members discussed the frustrating reality that stem cell therapy for dry AMD remains years away, with one member's retinal specialist... Read more

Members discussed the frustrating reality that stem cell therapy for dry AMD remains years away, with one member's retinal specialist explaining that current clinical trials focus on gene therapy involving a single injection that could eliminate the need for ongoing treatments, though widespread availability may be a decade off. Several members shared the emotional toll of their diagnoses, describing anxiety, fear of vision loss, and the mental challenge of waiting and uncertainty, while others found comfort in living one day at a time and maintaining hope through faith and family longevity. A recurring theme was the practical advice to take PreserVision supplements to slow progression, eat nutrient-rich foods like kale and carrots, and seek second opinions from specialists who provide clear information and support rather than leaving patients to navigate their diagnosis alone.

A myAMDteam Member

Shirley, Did your Dr give you any idea of how long before your dry AMD will progress to affect your vision ? It sounds like you will not need to worry unless it changes to wet AMD. My uncles Dr told him to take Perservision to slow any AMD progression. He did for years and did not seem to be bothered by his AMD. He died at 92 yo with his vision intact.

March 9, 2025
A myAMDteam Member

Wow, I'm not sure I have 10 years to wait at 85 years old now, but my aunt lived to be 106 and was walking on her own. So maybe there's hope for me. As long as my eyes don't get worse, I can handle that.

January 18, 2025
A myAMDteam Member

I had that conversation with my retinal specialist last week. I was told that stem cell therapy for this is a long way off. The current clinical studies are gene therapy. It involves one injection to place a gene in the right position and that’s it. No more injections. Just wait for it to work. He says they are having success with it in the new limited clinical studies but he imagines it will be 10years till this is a common treatment.

January 18, 2025
A myAMDteam Member

I am feeling you on that one. I have Severe GA in my left eye and just hoping my right eye does not get any worse.

March 16, 2025
A myAMDteam Member

I don't deal in the future I just live one day at a time Tomorow is never promised for anyone!!!!

March 5, 2025

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