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Real members of myAMDteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myAMDteam Member asked a question 💭

I was told there was no treatment that could be done it would worsen the situation I was told you to suck it up and deal with it

May 12
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Reactions
A myAMDteam Member

Oh my goodness, what a heartless thing to say. I hope you can find a different doctor that realizes how frightening your diagnosis is and helps you manage your situation as best you can. It's certainly understandable if you're dealing with depression and/or anxiety. Please seek whatever help you need to get the best care, whatever that means, and not be hard on yourself for needing compassion as well.

May 14
A myAMDteam Member

Now they say that's parasite is in a head eating my brain up is that true is that a damn worm eating my brain is that why I'm having brain fog or that just called and getting old

May 12
A myAMDteam Member

Why is blindness and death associated as almost the same experience

May 12
A myAMDteam Member

I couldn't agree more! You need good medical care BUT that should never include that kind of put down remark. You deserve more!
There really is empathetic, kind medical help available. Read reviews on prospective practitioners, then choose the best quality of skills in empathy and kindness as much as medical expertise. I just did this myself, you will be glad you did.

May 15
myAMDteam

It sounds like you're feeling frustrated and dismissed, and that's completely understandable. No one should ever be told to just "suck it up" when dealing with a health condition — you deserve proper care and support.

The question here seems to be about what can be done when you feel there are no treatment options available Show Full Answer

It sounds like you're feeling frustrated and dismissed, and that's completely understandable. No one should ever be told to just "suck it up" when dealing with a health condition — you deserve proper care and support.

The question here seems to be about what can be done when you feel there are no treatment options available for your condition.

While there may not always be a cure, there are still ways to manage age-related macular degeneration (AMD) and slow its progression. Here are some things worth discussing with a specialist:

- Lifestyle changes — quitting smoking and eating a diet rich in antioxidants (like leafy greens) can help slow AMD progression
- AREDS2 supplements — specific vitamins shown to reduce the risk of AMD advancing
- Anti-VEGF injections — for wet AMD, these can help preserve vision
- Low vision aids — tools and devices that help maximize the vision you have

If you feel your concerns aren't being heard, it may be worth seeking a second opinion from a retinal specialist. You are your own best advocate, and there are doctors out there who will take your concerns seriously.

May 12
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